Attendance Allowance: A Plain English Guide for Families
Attendance Allowance is the most commonly missed benefit in older age. It is not means tested, it is not taxed, and it does not depend on savings, a pension or owning your home. If you are over State Pension age and you need help with personal care or supervision because of illness or disability, you may be entitled to it, whether or not anyone is actually helping you yet. This guide explains the rules in plain English and how families in Surrey and Middlesex typically use the money.
Attendance Allowance is a weekly payment from the Department for Work and Pensions for people over State Pension age who need help with washing, dressing, eating, toileting, moving safely around the home, or who need someone to keep an eye on them to prevent harm. It exists to recognise the cost of needing care, so there are no rules about how you spend it.
Crucially, it is paid on the basis of the help you need, not the help you receive. Many older people who manage alone, slowly and with difficulty, assume they do not qualify. They usually do. Nobody has to be caring for you already, and you do not have to be spending money on care to claim.
Not means tested: savings, income, pensions and property are irrelevant
Tax free and paid directly into your bank account, usually every four weeks
Does not reduce your State Pension or Pension Credit
Can increase Pension Credit, Housing Benefit and Council Tax Reduction
Paid whether you live alone, with family, or with a live-in carer
The two rates and which one applies
There are two rates. The lower rate is for people who need frequent help or supervision during the day, or during the night, but not both. The higher rate is for people who need help or supervision both day and night, or who are nearing the end of life.
Night needs are the ones families most often forget to describe. Getting up for the toilet with an unsteady gait, needing repositioning, calling out in confusion, or needing someone within earshot in case of a fall all count as night needs. If both day and night support is genuinely needed, apply for the higher rate rather than settling for the lower one.
How to complete the form well
The claim form is long and the questions invite short answers, which is exactly what costs people money. The assessor cannot see your relative. They can only read the description you give, so describe the worst realistic day rather than the best one, and describe the help needed rather than the diagnosis.
Write about time, safety and repetition. How many minutes does washing and dressing take with help, and how long without it? How many times a night does the person get up? What has happened when they have tried to manage alone, such as a fall, a missed medication, a burn, or a wandering episode? Concrete examples carry far more weight than 'struggles with mobility'.
Keep a two week diary of help needed before you write anything
Describe the worst realistic day, not an unusually good one
Count supervision and prompting as help, because it counts in law
Include falls, near misses, missed medication and confusion at night
Ask the GP, district nurse or care manager to support the claim
The special rules for people nearing the end of life
If someone has a terminal illness and is not expected to live more than twelve months, they can claim under the special rules. The claim is fast tracked, paid at the higher rate automatically, and does not require the long care questions to be completed. A clinician provides an SR1 form.
Families arranging palliative care at home should ask the GP or hospice nurse about this on the first conversation. It is one of the few parts of the benefits system that moves quickly, and the money can be in place within a fortnight.
How families use the money towards care
Attendance Allowance rarely covers a full care package on its own, but it takes a meaningful bite out of one. Families commonly use it to fund a daily morning visit, a weekly sitting service so a spouse can get out, a night check, or the shortfall on a live-in placement.
With visiting care from £22 an hour, the higher rate covers a useful number of hours each month. Because the payment is not means tested, it stacks with local authority funding and does not disqualify anyone from a council assessment. If you are also being means tested by the council, Attendance Allowance is usually treated as income, so it is worth taking benefits advice before you finalise a package.
What to do if the claim is refused
Refusals are common and are frequently overturned. Ask for a mandatory reconsideration within one month, and use the opportunity to add the detail the original form lacked, particularly around night needs and supervision. Attach a care diary, a GP letter or a falls record.
Age UK, Citizens Advice and your local carers centre will all help with this at no cost, and our care managers regularly point families towards them. We do not charge for benefits guidance and we do not take a cut of anything you are awarded.
Frequently asked questions
Does Attendance Allowance affect my State Pension?
No. It is paid on top and does not reduce your State Pension, and it is not taxed.
Can I claim if I have savings or own my home?
Yes. Attendance Allowance is not means tested, so savings, property and income are not taken into account at all.
Can I claim if my family help me rather than a paid carer?
Yes. The claim is based on the help you need, not on who provides it or whether you pay for it.
Will claiming stop me getting council funding?
No, but the council may count the money as income in its financial assessment, so take benefits advice before finalising a care package.
How long does a decision take?
Standard claims usually take several weeks. Claims made under the special rules for terminal illness are normally decided within days.
Can Reedsfield Care help with the form?
We cannot complete it for you, but our care managers will talk you through what to include and can provide a written summary of the support we deliver.